I mean, let’s face it. When we go through all that work of assessing a patient and making these phenomenal recommendations, we get a little testy when they are not followed by the patient, nursing staff or family.
Do we ever ask WHY these recommendations are not being followed?
Let’s face it. We really don’t need a comprehensive study to determine that thickened liquids are not as tasty as regular liquids and pureed hot dogs just don’t cut it at a baseball game.
Colodny in 2005 found that 40% of patients with dysphagia that are capable of independent feeding choose to NOT follow the recommendations of the SLP.
Why would that even be a question?
Think about these factors:
- Loss of independence
- Loss of pleasure
- Family pressure
- Financial concerns
- Lack of information
- Religious/spiritual belief
- Previous experience
These factors were all found to contribute to non-compliance. How many patients or family members have ever said to you…..”I never knew that swallowing could be affected.”
There is such a lack of understanding of dysphagia, among the medical field, patients and lay people.
How do we bridge this gap?
Seriously, nursing staff should be compliant with my recommendations, right?
Not always. And why would that be?
Another study by Colodny in 2001 looked at why nursing staff does not follow SLP recommendations. Barriers to following recommendations:
Nursing staff found that it was a hassle and time consuming to thicken liquids and to prepare food to meet patient needs. They maybe lacked knowledge of feeding techniques, why the recommendations were made or even WHO needs to have the diet modifications. Nursing staff also may disagree with our recommendations. They may see Patient Joe that is chugging away at a glass of water. He never coughs. Nope, he’s a silent aspirator. He won’t cough. The problem is, the nurse doesn’t see any overt clinical symptoms that are expected with aspiration.
So, don’t go getting mad at your patients, families or staff. Maybe they just don’t understand. It’s amazing what a little education can do to bridge the gap. Now, this isn’t always the case, but it’s always worth the effort.
- Colodny, N. (2001). Construction and validation of the mealtime and dysphagia questionnaire: An instrument designed to assess nursing staff reasons for noncompliance with SLP dysphagia and feeding recommendations. Dysphagia, 16(4), 263-271.
- Colodny, N. (2005). Dysphagic independent feeders’ justifications for noncompliance with recommendations by a speech-language pathologist. American Journal of Speech-Language Pathology, 14(1), 61-70.
- King, J. M., & Ligman, K. (2011). Patient noncompliance with swallowing recommendations: reports from speech-language pathologists. Contemporary Issues in Communication Science and Disorders, 38, 53.
- Morris, L. S., & Schulz, R. M. (1992). Patient compliance—an overview. Journal of clinical pharmacy and therapeutics, 17(5), 283-295.
- Ekberg, O., Hamdy, S., Woisard, V., Wuttge–Hannig, A., & Ortega, P. (2002). Social and psychological burden of dysphagia: its impact on diagnosis and treatment. Dysphagia, 17(2), 139-146.